tombert
4 months ago
I've had tinnitus in my left ear for about six months now. I was hoping it was the result of an earwax impaction or something, but after having several specialists look at my ears, test my hearing, and getting an MRI to check for tumors, the overwhelming medical consensus of the cause appears to be "I dunno", and at this point I have given up on it being temporary.
About 95% of the time, I can fairly easily just tune it out and it's no different than any other background noise. Living in NYC helps, there's a fair amount of constant background noise even in the best of times. I've found that finding 10-hour videos on YouTube of TV static at a low volume can be helpful for the remaining 5%.
Still I would really prefer it wasn't there. The ringing in my left ear is still annoying, and I'm only in my mid 30's, so assuming an average lifespan I have anywhere from 40-60 years left to enjoy this constant ringing.
I'll play with this thing to see if it helps.
guilamu
4 months ago
A message of hope.
I got mine in my 30's too. The first week I thought I was going crazy, and this was the end of my life. I was shocked, I couldn't go to work for a whole week.
I then saw a doctor who said to me: "Man, I've got tinnitus since 20 years and I barely hear it anymore. The more you accept it, the more it'll fade."
A decade later, my own experience is exactly this. I accepted it as one of the body malfunctions that comes with age for everybody. I barely hear it anymore except in extremely low noise situations and it doesn't bother me at all.
I wish you well.
bsimpson
4 months ago
I've always been someone who hears high pitched noises that "normal" people don't. I'm also in my 30s, and I'm sure those "teenage alarms" in Japan would work on me. I was the one who would walk up to a CRT and turn it off when everyone else thought it already was.
What helped me accept (and ignore) tinnitus was realizing that I had already grown accustomed to tolerating that sound indoors. When's it's something you have no agency over (like "it's an old house and the wires just make that sound sometimes"), you learn it's part of the environment.
Accepting it as part of the environment gets you past the "OMG my body is ruined forever" anxieties and back to normal life.
meindnoch
4 months ago
By the way, that CRT squeel is the sound of the flyback transformer, which operates at 15.625 kHz for PAL and 15.734 kHz for NTSC sets.
lucaslazarus
4 months ago
This is so relatable, though it has a strange downside. I've had tinnitus for as long as I can remember and always thought I was some superhuman child who could hear electricity. Didn't actually realize it was tinnitus until I heard it at the top of a mountain I was hiking in remote New Mexico a few years ago. I probably got it from chronic sinusitis as a child, but I'm still not sure what to make of it.
DrSiemer
4 months ago
That's actually not tinnitus but (from what I've been told) cochloreal hyperacusis, another form of hearing damage.
I always have that, but I only hear a random high pitched tinnitus noise in one ear, rising and falling in volume for max 10 seconds, about once every few months.
I can still hear old CRTs in my forties, although it's less maddening now. They had those mosquito devices, that are intended to repel kids, for a while at a shopping mall near me. They repelled me very effectively as well.
A friend once thought it was funny to try the 15.000Hz silent ringtone on me, although I had told him not to. It made me react without conscious input and I nearly broke his phone.
sowbug
4 months ago
I only hear a random high pitched tinnitus noise in one ear, rising and falling in volume for max 10 seconds, about once every few months.
I get these, too. I just looked it up, and it's called "Sudden, brief, unilateral, tapering tinnitus (SBUTT)." That's quite an SEO-friendly name.
PeterStuer
4 months ago
CRT's and coil whine used to drive me crazy as well. It was the number 1 factor in any electronics purchasing descision.
kiddico
4 months ago
> I always have that, but I only hear a random high pitched tinnitus noise in one ear, rising and falling in volume for max 10 seconds, about once every few months.
Holy crap! I'm not alone! And now I have a name for it. They've always freaked me out and I don't even know how to describe it to people.
BobbyTables2
4 months ago
Funny I could hear CRTs too. In teens could hear faint high pitched noise in extremely quiet outdoor settings. Bad tinnitus 15 years later. Slowly reduced and I’m less conscious of it now.
senectus1
4 months ago
huh. I could hear that noise as well and I have had tinnitus for 30 odd years.
noefingway
4 months ago
I'm 73, had tinnitus all my life, I am used to it. Some days it seems louder than others. When I was 17-18 I worked as a stock boy at a JC Penney store. I used to hear this high pitched squeal near the front entrance. I mentioned it to my compatriots who responded "What squeal?" I always found a way to avoid the front entrance on my rounds. So yeah, I get the alarms
NBJack
4 months ago
I heard older TVs being turned on and off as well as CRT monitors. Now, its that very range I 'hear' all the time. Part of me wonders if it was sensitivity to that spectrum that damaged my hearing when I was around multiple CRTs so much.
I have known people that have it much worse than I face daily.
BobbyTables2
4 months ago
Me too!
I genuinely could hear CRTs when I was 5.
Tinnitus sound now is very similar for me too.
Hearing test showed high frequency hearing loss in that range which is well above human speech and a lot of music.
tombert
4 months ago
Yeah, for me it sounds almost exactly like the squeal that CRT TVs make. Like, it's basically indistinguishable from that for me.
FLT8
4 months ago
I have a (completely unscientific) theory that my tinnitus is a result of early exposure to CRT TV's and my brain trying to compensate for the noise. The reason I say that is that it's roughly in the same frequency band as the PAL horizontal refresh. It's been with me basically my whole life, since long before any real hearing damage would have set in anyway - I remember asking friends when I was 9 or 10 whether they could hear it too. It wouldn't surprise me if there was a window of opportunity when the brain is still plastic for these kind of "adaptations" to set in place.
otherme123
4 months ago
For me, after 20'ish years with tinnitus, the only thing that brings the buzz to the foreground is reading/hearing the word "tinnitus".
piva00
4 months ago
Almost the exact thing to me, 20+ years of tinnitus which sits calmly in the background most of the time except when I read the word tinnitus, or I'm feeling anxious for some reason: when I can't fall asleep when I need a good rest, life stresses, and those moments when a different pitch shows up in one ear and louder. In those occasions I can clearly hear the tone of mine.
It's mildly annoying but I've definitely learnt to live with it pretty ok.
jay_kyburz
4 months ago
Haha, its funny you say that because I've been reading a novel at the moment where the main character has debilitating tinnitus, and every time the author describes it, I can hear my own.
patricklewis
4 months ago
Same here! Just reading the title of this post made me aware of mine for the first time all day.
glimshe
4 months ago
It's very much like eye floaters. They are always there, but you can tune them out most of the time.
Alejandro9R
4 months ago
Completely agree. I've had some light/moderate floaters in my left eye which were very noticeable under a white screen, clean walls, or full bright sky in the evening. It came pretty sure because of a very stressful period at 27.
Here I am, 31. I have to look for them really really hard to see if they are still there. Only when I have a streak of stressful days and bad night sleep, they will be visible again. It comes without saying that I had to change my life in many, many aspects, not only due to these floaters. A much calmer life, better food, gym, financial security, better friends and people around me, and cultivate a spiritual being in some sense. The mind can be shaped in many many ways it's fascinating.
golem14
4 months ago
Do check your eye pressure regularly -- if high, you have a higher chance of detached retina, and in that case more floaters all of a sudden warrant an immediate drive to the ER. This can apparently happen when youi fall or hit yhour head. Once that happens, up only have so much time to reattach the retina before it dies off. According to my eye doctor.
[Of course this is not be used as medical advice, as your LLM for that ;)]
a-dub
4 months ago
my floaters showed up when i was 14- it was kinda shocking and scary at the time to be a freshman in high school and suddenly there were massive sensory disturbances in my eyes. ophthalmologists would just say to ignore them. apparently there's a pretty crazy surgery where they remove all the vitreous fluid from your eyeballs, but instead i decided to follow the ophthalmologist advice and they pretty much stopped bothering me.
tinnitus seems similar. maybe in the future there could be some kind of functionally guided high intensity focused ultrasound ablation procedure that could dull out some of the malfunctioning percept, but for now probably the best bet is to ignore it.
on a related note in interesting auditory neurotechnology, vestibular implants seem pretty cool!
pasc1878
4 months ago
I have both,
No you can't tune them out.
They are always there, sometimes if you are very lucky you can get engrossed enough not to have them as the first or second thing on your mind
But it is always in the top five you never can tune them out you have always be aware as not to to certainn things.
typpilol
4 months ago
Brains crazy
I had a slight crack in my windshield right at eye level view. And after a minute of driving I don't notice it at all anymore
BobbyTables2
4 months ago
The fact we don’t notice our nose is crazy! It’s right in front of us!
ricardobeat
4 months ago
We have a projector instead of TV in the living room, and there is a small outlet inside the projection area, top right corner. We can go months without realizing/remembering it's there, until it accidentally matches a shadow or object in a scene... the brain just deletes it.
gblargg
4 months ago
I also thought I would go crazy when mine started after some ear infections in my 20s. It's gotten a lot worse over time but I mostly only notice if I think about it, and when I'm laying down to sleep, and when I wake up (it seems so strong). I've slept with white noise all my life, and without that I the tinnitus would definitely disturb my sleep.
drewcon
4 months ago
Same exact story for me.
Audiologist suggested treating it like a rock in your shoe. At the time seemed like impossible advice but now I just live with it and it’s 100% fine.
Also the idea that it is actually made worse by anxiety was a game changer for me. Literally, “don’t worry about it” is the exact right advice.
spoiler
4 months ago
I've had tinnitus since... At least my early 20s. Or that's the first time I found out about the concept. Until that point I assumed it's background noises everyone experiences.
I only notice it when it changes abruptly (very rare), but otherwise I just tune it out
HippyTed
4 months ago
I have had it since I was a teenager like 30 years ago. Honestly, I do not notice it unless someone points it out. Yes it is always there but there is nothing I can do about it so I don't worry about it.
Crontab
4 months ago
I've had it for four years and I don't notice it most of the time anymore. But for reason just reading about it makes me notice it.
radium3d
4 months ago
Yeah, it just blends into the background for me, I've had it for decades. I blame the loud music as a kid.
senectus1
4 months ago
same here. now 51. I reckon i got it in my early 20's.
Aurornis
4 months ago
Once the major (though exceedingly rare) problems have been ruled out, the best course of action is to start learning to live with it.
It’s not what anyone wants to hear, but it’s the pragmatic approach that works best from everything I’ve seen.
The people who become involved in tinnitus forums, support groups, and chasing experimental treatments think they’re helping themselves but they’re really only bringing it to top of mind over and over again.
It feels frustrating to give up and disconnect from all things tinnitus related on th internet, but disconnecting is exactly what helps with the process of letting it fall into the background of your life. Constantly bringing it to the foreground and reading about it only makes it worse.
xnyan
4 months ago
This is how it worked for me. I’ve had it in my left ear for decades, the last time I thought about it was the last time I read an article about tinnitus on hacker news.
pfortuny
4 months ago
Meditation, despite being a common trope, has helped me accept it too.
diego_sandoval
4 months ago
In my case, this mindset + SSRIs have helped me tremendously.
I didn't want to depend on a drug, but after getting into a really bad, quasi-suicidal mental state, I went to the psychiatrist. I've been on escitalopram for 4 months and it has really helped reduce the distress associated with tinnitus in like 80%. Making an effort to not think about it has also helped.
I hope to stop taking the drug at some point and see if the mental improvement persists.
sixtyj
4 months ago
Yes, the best way is to let it fall into background. Just keep going.
reify
4 months ago
I too had exactly the same constsnt ringing in my left ear.
I could not get to sleep because the noise was so loud and intense.
It reminded me of those spy films where they torture someone playing loud heavy metalcore all day and night.
I had a X-ray, ultra-sound and two Consultants had a look.
Both said that there was nothing wrong with my ear. No ear wax, no damage, no issues at all.
They both mentioned that tense facial and neck muscles may be a cause.
As well as the constant ringing, there is a sound like a central eating system, thumping and groaning away, in both my ears too. I initially thought the thumping and groaning was the Mrs snoring.
I bought some earloops thinking my ears were too sensitive and I was somehow hearing noises from the houses down the road and the motorway traffic 3 miles away. to no avail, even with the earloops blocking all exterior noise, I still had the high pitched and low piched internal noises.
I found a way to reduce the noise.
I was laying in bed one night and I was relaxing my jaw when I noticed that if I opened my mouth and let my jaw hang loose all the noises stopped.
So over a month or so I tried to train my jaw to be less tense and more relaxed.
For me it worked.
it was my jaw.
I'm 69, so have a few less years years than your good self
BobbyTables2
4 months ago
I first got pretty bad tinnitus about 10 years ago while still fairly young. Didn’t go to concerts, shoot guns, hammer nails, or any activity typically associated with hearing loss.
At one point it was so loud, it would drown out the sound of a dryer when right next to it.
This was party from impacted earwax but still pretty bad after cleaning.
Hearing test showed substantial high frequency loss (well above speech frequencies)
A few suggestions:
1) Listening to light music helped me stop focusing on it.
2) Tried Taurine. Unsure if it helped, didn’t hurt. Make sure you aren’t low on Vitamin D. That alone causes enough other problems too.
3) Make sure you don’t clench teeth or have dental issues. I think that might be able to aggravate the nerves.
It never went fully away but I’m no longer overtly conscious, just faint in the background. Always aware of light pressure/muffled feeling in affected ear. Changes were slow and gradual but did happen. Doesn’t bother me much anymore. Do miss the “sound of silence” but light background music while working is enjoyable .
victornomad
4 months ago
I started having tinnitus in both ears 10 months ago.
I don't know the exact cause, but I started noticing it during a job-related burnout and a series of work-related events that significantly increased my stress levels.
It was so bad to the point I had to abruptly quit my job (FYI, freelancing without a safety net sucks).
My doctor gave me pills to help calm my brain and the noise, especially during the night. I also have hypersensitivity, so having a constant noise ringing was not ideal :/
Luckily my ENT doctor recommended that I do multiple things at the same time:
- tinnitus retraining therapy (TRT), listening to white noise ~4 hours a day
- going to a therapist
- daily meditation
- daily exercise
- reducing salt, chocolate, coffee, etc.
The hissing is still there, but I can now ignore it most of the time.I started to see life a bit differently since then. Things that disrupt your life can happen so suddenly...
I'm still trying to find a job, but I lost a lot of confidence and developed a bit of a trauma since I don't want to experience burnout again :/
mouse_
4 months ago
You can do it.
It will be easy once you start.
butlike
4 months ago
Did they really suggest white noise? I imagine it was pink or brown noise? As I understand it, white noise is the only damaging one since there's no "falloff" to the PWM, it's just "white" or "black," so the spikiness of the modulation can be damaging.
victornomad
3 months ago
The point of the white noise in TRT is not masking the tinnitus so it is not played loud.
The white noise must be played below the level of the tinnitus, so one can hear both sounds simultaneously. Doing so, in theory, the brain learns to reclassify the tinnitus as an unimportant signal (noise).
tptacek
4 months ago
If it helps: I've gone through years of coping strategies and coming to peace with it; it'll probably annoy you a lot less a year from now than it does today. (I had a really rough run in my teenage years, but these days a cure for tinnitus is kind of only academically interesting to me; I mean, I'd do it, but it probably wouldn't change my life much.)
semitones
4 months ago
Remarkably, our experiences are _incredibly_ similar. Left ear, about a year, got all those tests done, specialists don't know other than "that's tinnitus for you - if I had a cure I'd be rich", 98% of the time I tune it out, I live in NYC, early thirties.
If you ever find something that works for you, please reply here @tombert, I'll do the same :)
ay
4 months ago
Back at some point on HN, I saw https://generalfuzz.net/acrn/ - and it seems to be useful at least temporarily - in my and others' anecdata. FWIW.
dahart
4 months ago
Was going to post this too, I bookmarked it after seeing it on HN and I use it often. Yeah it seems to help me a bit. It seems handy just to identify tinnitus tones, when you have clear tones (I not not everyone with tinnitus does). I’d be interested to hear from anyone who’s had more than moderate success with ACRN.
I already posted another comment, but will mention here for GP that the ‘White Bursts’ noise generator on mynoise.net is where I’ve experience the strongest tinnitus reaction. I can audibly hear the tinnitus drop with every cycle, and after listening to it for a few minutes, my tinnitus is quieter for maybe a half hour, then it comes back later.
oh_my_goodness
4 months ago
I got tinnitus in one ear after using music in headphones to block out other noise. I was probably using the headphones too loud and too often. This happened 15 years ago. It was pretty bad at first. Since then, very slowly, it has mostly "healed" or something. It's still there. But it's much less severe than it was.
I also experienced significant hearing loss around the same time. My hearing had always been absurdly good, but that changed over about a year. Now I can hear well enough to get by, but I really miss what I had. Protect your hearing!
bsimpson
4 months ago
Earplugs are like condoms:
They make a sensual pleasure less pleasurable, and they also protect against life-altering consequences.
tbossanova
4 months ago
You can get earplugs that only lower the sound quality a tiny bit these days. I bought some from the drum shop and they’re great. As you say, $20 or so to avoid lifetime ear damage is a very very good investment. I feel like concerts aren’t quite so loud these days too, maybe audio gear quality is better and the sound engineers don’t feel the need to turn it up quite so loud.
YZF
4 months ago
Earasers is one brand. Concerts are still pretty loud.
I wish I took better care of my ears as damage is pretty much irreversible.
ycombinete
4 months ago
Me too. My lifelong tinnitus is the result of standing too close to a monitor at a single loud concert. If I’d worn earplugs just that once I’d never have got it.
butlike
4 months ago
Ambient crowd noise before the music starts is ~85dB inside a venue (not to mention festivals), which is ~10dB above the acceptable limit for permanent hearing damage. The loudness, to some extent, is a necessity. That being said, I've noticed diminishing returns from a ~100dB show to a ~110-112dB show.
Street fests are the worst since you have a perfect combination of amateur sound engineers, outside sound shaping, and an amateur audience to boot. Sometimes I think bringing children to steet fests should be illegal if there's going to be that loud of music. I've seen some clock in at ~115dB! Ridiculous.
jskopek
4 months ago
I’ve also noticed that younger people seem to wear earplugs at concerts a lot more often. I get the feeling there’s been a change in attitude towards hearing protection. My guess is that instagram ads for earplugs and AirPod hearing health features have had something to do with it
BobbyTables2
4 months ago
The last time I attended a concert, it was still very loud even with earplugs!
user
4 months ago
butlike
4 months ago
After wearing some to every show now, I prefer it.
Gotta get better about the condom usage though
manoDev
4 months ago
I feel you. Here’s things you can try (in this order):
- Cut stimulant use (coffee, energy drinks) and alcohol
- Drink plenty of water
- Check blood pressure
- Talk to a dentist and check if you grind teeth or suffer from jaw stiffness
- Supplement Magnesium (chelated/glycinate, 300mg/day)
I’m ignoring issues of the ear canal (wax, secretions) since you mentioned it.
Studies point to tinnitus being either caused by changes in blood supply on the inner ear, of neurological origin or trauma. These are all measures I took and greatly improved my case (and when I neglect one of those, it comes back).
mopenstein
4 months ago
Mine came on when I was about 12 years old and I'm convinced it was brought on by severe anxiety.
At the time my life had changed dramatically. My parents split. Moved to an area adjacent to government housing projects, through which I had to travel everyday to school, and I was, by virtue of unfortunately being wrong color, beaten daily by gangs of hooligans. I ended up sneaking through a slightly wooded area like a South American guerilla until they caught me there.
I couldn't handle it as I was already a sensitive kid and, the parent I ended up with, the other having gone to jail, was compassionless due to their own horrific upbringing. So I had no way of coping which led to total breakdowns and anxiety attacks.
Tinnitus reared it's ugly head soon after which further exacerbated the anxiety.
But the correlation is all speculation on my part because my parent only took me to the doctor a year or so later after much complaining. And only for the tinnitus, not the crippling anxiety.
manoDev
4 months ago
Stress -> jaw clenching -> tinnitus.
tombert
4 months ago
I don't drink alcohol at all and haven't for quite awhile, and my blood pressure is pretty low and hasn't changed significantly. I did try cutting out caffeine entirely for several months (and the tinnitus actually started when I wasn't haven't any caffeine at all).
I do very slightly grind my teeth in my sleep, but in this particular case the problem is basically solved (at least at the dental level) because I have mild sleep apnea so I sleep with a plastic mouthpiece every night anyway.
I'll look into the magnesium supplements.
manoDev
4 months ago
Yeah, caffeine is not the cause per se - the thing is it has both vasoconstriction and vasodilation effects at different times, so it can mess with blood vessels in the inner ear. It totally makes sense if you get tinnitus when you cut caffeine after your body is used to it.
Magnesium plays a part on vasodilation regulation as well, and many people are silently deficient on it. It’s hard to detect deficiency w/ blood samples, because the body works hard to keep blood concentration stable. You will know you do if you get muscle cramps or twitches.
ectospheno
4 months ago
I have had tinnitus in my left ear since 2011. You do get used to it. I really only notice when someone says the word or an article on it pops up. I considered setting up some kind of web filter just so I never saw the word again. I notice it now, for instance.
To everyone who doesn't have it, wear ear plugs at concerts, be careful when you remove the ear plugs, and use the max volume limiters on your phones. Enjoy your hearing while you have it.
bluescrn
4 months ago
> I really only notice when someone says the word or an article on it pops up.
Oh, exactly this. Haven't thought about mine in months, but as soon as I actively think about the subject, suddenly the high-pitch whine in my left ear is back and louder than ever.
jv22222
4 months ago
I have found notch therapy to be quite helpful. It's basically where you tune a note to your exact tinitus pitch and then create white noise that has every khz EXCEPT your pitch. Then you listen to the notched sound at about the same level or slightly higher than your tinnitus. So, basically your "tinnitus" is notched out of the sound. The theory is it can retrain your brain to not produce the fake sound. I also just find it helps to alleviate the symptom.
My own tinnitus is 15khz which is annoyingly high. And I suspect the reason why tools like Tinnitus Neuromodulator don't help much in my case.
cpeterso
4 months ago
There are expensive apps and devices to create notched music or white noise. Fortunately, there are also free YouTube videos with noise notched for different frequencies. Identify your tinnitus frequency using one of the web-based tone generator tests, then find and bookmark the video notched for your frequency.
I like “tinnitusreliever610”. TBH, I haven’t found the notched noise to be any more relief than full spectrum white or pink noise.
GioM
4 months ago
I have had tinnitus from an infection, which (very thankfully, and I admit very luckily) slowly resolved over a period of years.
That said, I have experienced occasional reoccurrence. One thing that helps is I ask my masseuse to concentrate on the sides of my neck- there is a specific muscle that when tense can cause ringing.
Does your tinnitus get momentarily worse when you tense your neck muscles?
tombert
4 months ago
I just tried it, it does not change significantly when I tense my neck muscles.
hyperpl
4 months ago
Another message of hope for anyone struggling with the possibility of having tinnitus:
I may not be able to fully recount all the factors but I believe my ears may have had some residual fluid after recovering from covid (my covid symptoms were entirely unpleasant and impacted me differently in many ways). Before my ears cleared up, I took a domestic flight where I actually got vertigo for a few 10s of seconds on ascent. My ENT believes my eardrum expanded to touch the inner ear.
The following day I went to a gun range and did skeet shooting for a couple of hours then shot really big guns and sniper rifles. The earplugs I brought myself were likely not adequate and taking them out and putting them in repeatedly in relatively cool weather likely didn't provide the best seal either.
That night or the next day I noticed lots of ringing in my ears and I started to become worried when it was still there even after a week. The worst was being in silent meeting rooms at work where it was most noticeable. It was extremely depressing and I nearly lost all hope.
I visited 2 separate ENTs and each just sent me re-take my yearly hearing test. They didn't really provide any comforting words other than to take the test and wear hearing protection, etc..
Before the hearing test (~2 weeks after the gun range and flights) I explained everything to the audiologist and he said "Lots of people have various degrees of tinnitus/ringing, just don't think about it. I have it and that's what I do. Don't let it bother you and live your life."
Interestingly enough, my audio test came back better than the previous 10 year results and since then I just don't think about it. If I do I can certainly hear it. My only personal takeaway is that the brain and body are very complex and have an arsenal of mechanisms to deal with trauma and that for this particular instance I've been very lucky.
rwyinuse
4 months ago
I have slightly similar experience. When I was a teenager, I had a random flu shortly before two flights abroad. I didn't feel that sick anymore, but apparently my ears were still badly blocked. On descent my ears would hurt like hell, and I was half-deaf for rest of the day. That was more than ten years ago, and since then I've suffered from moderate tinnitus.
I too got used to it, but I would really advice people to avoid flying sick if they can help it (or at least use some meds to unblock your ears while doing it).
breendreams
4 months ago
I’m basically in the same exact situation as you, only ringing in my left ear. MRI/hearing/etc tests have all shown nothing and I haven’t received any answer for it. I’ve had it for close to a decade now. NYC definitely helps drown it out but life would be better without it.
Towaway69
4 months ago
I had tinnitus before I knew it was tinnitus - I thought it was normal. I literally thought that everyone had a constant sound in their ears.
It was not until someone explained that they had tinnitus and told me their symptons that I suddenly realised that I too had tinnitus.
Since then it's become harder to ignore it but on the other hard, its nice to know that it's not normal and that others can truly hear nothing - something I do wish I could do: hear nothing. I did recently discovered that head under water helps to reduced the sound.
Acceptance has been my treatment for years, I hear it when there is mental downtime. So it does keep me busy (mentally) so that I don't hear it - ironically tinnitus motivates me to do stuff!
technothrasher
4 months ago
I've had it as long as I can remember. Like you, I thought it was normal. When I was a little kid I thought that was what the Simon & Garfunkel song "The Sound of Silence" was talking about. Since I suspect I've had it since birth, it doesn't bother me. It's just something that is. I feel bad for the folks who get it later in life and have trouble with it. My neighbor got it a few years ago and it keeps him up at night sometimes.
mynameisash
4 months ago
> Since I suspect I've had it since birth, it doesn't bother me. It's just something that is. I feel bad for the folks who get it later in life and have trouble with it.
100%. I remember being rather young - maybe 5? - and listening to the deafening sound of ringing in my ears when laying in bed. Never knew that quiet was supposed to actually be quiet.
I wish I didn't have it, but I've literally never not had it, AFAIK.
Possibly unrelated: I can fall asleep within a minute of laying my head down, almost every single day. Built-in white(ish) noise machine?
butler14
4 months ago
Another message of hope: I'm mid-late thirties and had the exact same. Daily tinnitus from December 2024 through to around August 2025.
I went through MRI etc to no avail.
Then one day I felt something (extremely deep in my ear) just 'release', like a tube unblocking or pressure equalising. And the sound went away and (fingers crossed) hasn't come back since. This was after daily issues for 8-9 months solid.
LeoPanthera
4 months ago
> 10-hour videos on YouTube of TV static
Please consider a local noise generator. Static is incompressible so you're using quite a lot of data.
cnnlives8387
4 months ago
I’ve noticed that if I’m eating more salt, don’t sleep well, under a lot of stress, or taking anything that increases my blood pressure or affects vasodilation (supplements, some foods, stimulants, etc.), it causes me to have tinnitus. Loud concerts / music / sound-reducing headphone / noise can do it also.
tmcz26
4 months ago
Look into Ménière’s disease . I got diagnosed recently and those are all triggers for it. When undergoing episodes I also have vertigo. There’s medication for controlling the bigger symptoms.
nobleach
4 months ago
I'm on that same journey. 8 months ago, I was sitting at my desk and all of a sudden my left ear just went out. The ringing was there. I figured the same that it was wax. I've always had wax issues with that ear that require a doctor's office visit. (trying the home kits has only made it worse!) But this time the doctor came in, looked in the ear and said, "there's no wax at all in that ear". What followed sounds much like your journey. Visits to ENT, CT Scans - waiting on an MRI to ensure there's no tumor... All the while I went from having great hearing to having to say, "say that again" all the time.
semolinachops
4 months ago
I got tinnitus about 4 years ago in one ear. At first I thought it was stress with a new baby, moving house and a busy time at work. I thought maybe it was wax.
I saw a few specialists, had hearing tests, MRI and CT, and everything came back fine. Couldnt work it out so I gave up for a bit.
Later I went back to my GP and got another referral. This time the consultant asked the radiologist to focus on a specific area. He explained it can show up on a normal scan but unless they know what to look for it often gets missed.
That is when they found I have thinning of the bone over the inner ear called superior semicircular canal dehiscence SSCD.
I wear sleep earphones at night which have been life changing.
3shv
4 months ago
Is this an ad for Soundcore?
richwater
4 months ago
Yea i have no idea how that product relates to tinnitus
semolinachops
4 months ago
Inadvertent ad removed.
Sleeping with tinnitus can be very hard and increases the anxiety. At least it was for me. I found specific sleep earphones worked particularly well at reducing this.
geophile
4 months ago
I got tinnitus in my late 20s. Forty years later, it's still there. Research into the causes, and treatments, has been disappointingly slow.
I would really like to experience total silence at some point, but that seems very unlikely.
IndySun
4 months ago
There are lots of interconnecting bits inside and around the ear, and with that in mind...
Can you try something? Find a very quiet place, one where you do hear the tinnitus.
Move your jaw as far to left, and then to the right, and notice if the tinnitus stops, changes, or alters at all.
Next, get a firm hold of your earlobe of the tinnitus ear, and pull and hold it away and at various angles from your head; you can do this earlobe move separately or in combination with the jaw movements.
Do any positions improve the tinnitus?
mft_
4 months ago
Exactly the same story for me: right tinnitus just started one day in my 30s; examination, hearing test, MRI all normal. ENT specialist exhausted his diagnostic options then suggested ginger tablets.
It rarely bothers me (although it’s always there) but obviously there’s a cause and I’d like to find it. I have a suspicion it may be somehow related to neck anatomy and/or postural factors (it sometimes seems to worsen slightly with particular positions) in bed but beyond that I’m at a loss.
WanderPanda
4 months ago
I have a strong Tinnitus on one ear after an ear surgery for 8 years now. And I usually don‘t notice it for months at a time, even though it is there all the time (thanks for reminding me :p) So it’s not as bad as it might feel in the beginning. I‘m mostly bothered by my hearing being generally impaired by it. It sits at ~9kHz but it somehow still makes it significantly harder to comprehend voices.
r2ob
4 months ago
how did you came with ~9kHz number? I want to know my own LoL
rclkrtrzckr
4 months ago
I had mine measured a few years ago. I had given some headphones in a quiet room, with a low frequency sinus wave on it. Whenever I said I could hear the tone clearly, they increased the frequency. At one point, the tone blends with my tinnitus tone, that's the whole magic. They then measure the current volume in dB, just by increasing/decreasing the tone's volume.
I'm on 12kHz, vacuum cleaner level.
cpeterso
4 months ago
Just search online for tinnitus tone generator tests.
epolanski
4 months ago
I'm in your situation.
38, came out of nowhere few months ago, seen any kind of doctor, I hear this 24/7 whistle in my ear.
Being in silent rooms or trying to sleep is hard.
jskopek
4 months ago
It’s been repeated a lot in this discussion, but don’t loose hope. I had a very similar situation and for a while felt like I might not be able to keep living with this condition. A few months later I suddenly realized that I wasn’t thinking about it anymore, and then I had to start straining to notice it. The brain does adapt over time
thekurst_
4 months ago
I've had it for years in one ear as well as measured and diagnosed hearing loss in the same ear. At first it would come and go and then it became permanent.
In my experience, I barely notice it on a day-to-day basis.
What I have noticed is that it's worse/noticeable when after a night of drinking and if I'm tired/stressed.
bad_haircut72
4 months ago
Im curious did you also experience hearing loss? I started getting tinnitus in my left ear almost 12 months ago, but 12 months before that I started noticably losing hearing in my left ear (with audiology tests to back it up, Im basically deaf in one ear now). Also mid 30s.
tombert
4 months ago
Nope! I haven't really noticed any significant loss in hearing at a "vibes" level, but I actually got my hearing tested in both ears to be sure, and my hearing is actually slightly better than the average 30-something.
nswest23
4 months ago
I am pretty sure I've had it my entire life and for a long time I just thought it was the background noise of the universe. Never bothered me till I figured out that wasn't the case.
sixtyj
4 months ago
Kids told me that I am losing my hearing. So I went to hearing lab. When I told doctor that I have tinnitus in left ear for almost 10 years, he recommended lorazepam in tough times… that it works. :)
gridspy
4 months ago
Note - Lorazepam is one of those drugs which causes dependance if you use it regularly. If you find you need it often, get a substitute which is safe to use all the time.
sixtyj
4 months ago
Yes, I am aware of it. The doctor told me that I should use it only if tinnitus is too annoying - as lorazepam “unstress” the body (not sure if I explain it correctly), it also helps mute the tinnitus.
johnisgood
4 months ago
So... what? Everything causes dependence one way or another. What is the point of a substitute to "use all the time". It even reads funny to me. I would like you to explain what you meant by that. And what would you recommend as a great substitute of benzodiazepines (that are effective AND safe to use at all times)?
posix_compliant
4 months ago
Parent comment is right. I’ve used Lorazepam to treat tinnitus. It’s not worth it. In the long run it raises your base anxiety level. Currently I’m experimenting with Tizanidine.
johnisgood
4 months ago
That does not make parent right.
It might not be worth it to you, it might be worth it to someone else.
I would still like to hear about this substitute that is both effective and can be used "all the time".
Tizanidine causes "dependence", too, by the way.
Funny you mention Tizanidine, because that is what I want to try as well for my MS-related muscle spasticity.
Alprazolam works, but I have been using it for years and it would be great to finally get off of them. It does not last long either, and longer acting benzos don't work for me for some reason. I tried diazepam, which was supposed to be just perfect, but it did not work at all. :(
In any case, hoping tizanidine will work for me, we will see.
Let me know if tizanidine works for your tinnitus though, my mom has been "suffering" from it for a long time now.
stubish
4 months ago
Did you have Covid a short while before noticing? One of the not uncommon but under reported side effects is permanent hearing loss, which associated fallout such as tinnitus.
xtiansimon
4 months ago
Have you had dental work recently? Do you have a stiff neck? I’ve heard from other here that inflammation from dental work caused their tinnitus.
everyone
4 months ago
I tried Lenire and it didnt do anything, probably made it worse. Been doing CBT (Cognitive Behavioural Therapy) and I seem to be making some progress with it.
emeril
4 months ago
maybe see "Won-Taek Choe" - he's a legit smart hearing specialist ENT on UES
that said, prob nothing to do other than wait and hope for the best really
when i had tinnitus following an ear infection years ago, it lasted several months and gradually went away but I always had at least white noise around me and some people say "notch" therapy can be helpful...
pests
4 months ago
Same situation, basically went away a year later on its own. Every once in a blue moon or when I’m at the boundary of wake|sleep or sleep|wake I’ll kinda hear it again but I find if I just acknowledge the sensation, move on and continue what I was doing - it’ll be days or weeks until I remember it even happened. Focus on it less.
mrblah
4 months ago
this is anecdotal and not medical advice, but i reduced my tinnitus symptoms by ~90% by taking therapeutic doses (1200-1800mg/day) of benfotiamine (fat soluble form of vitamin b1) over the course of a month and a half.
i was taking it for unrelated nerve pain and was very surprised that my sense of smell and hearing also remarkably improved, to the point where i needed to reduce the long standing 'known' audio levels of all my various listening gadgets a few clicks. the ringing was a little worse for the first couple weeks, but then reduced a couple more weeks, then almost completely stopped 1 day.
from what i gather, high doses of the fat soluble form of vitamin b1 can repair nerves and is used as first line therapy in some countries for neuropathy, chronic pain and even alzheimers.
i'm sure it won't help everyone, i can't even find any solid research on tinnitus and benfotiamine, but putting this out in the ether since it is a cheap and relatively safe thing to try, i was completely surprised by this nice off-label side effect (it did help with my nerve pain as well). there is much more research based evidence on benfotiamine therapy for other nerve problems, and it follows that hearing and smell would also be affected, it's all nerves, good luck
edit * adding if you are taking high doses of benfotiamine, you should also be taking magnesium with it, i just took zma (zinc, magnesium and b6) at bedtime *
cyberpunk
4 months ago
Absolutely anecdotal, but my left ear tinnitus recently cleared up and ive been taking a b complex for a couple of weeks for unrelated reasons... Wild.
mrblah
4 months ago
i did a good deal of searching after i noticed my improvement, but only finding anecdotes, not a lot of real research specifically for tinnitus and b1/benfotiamine.
the cynic in me thinks the research around an un-patentable nutritional fix could only be funded in academia and there's much more serious nerve ailments that get the attention/dollars
OutOfHere
4 months ago
Even 80 mg of benfotiamine a day is too potent for me, giving me anxiety. 40 mg is more tolerable. I do take plenty of magnesium, zinc, and P5P. Be careful taking the basic non-P5P form of B6 because it risks causing serious neuropathy in the long term. Benfotiamine is more for managing damage from high glucose. I acknowledge your experience, but if your nerve damage is not from metabolic concerns, I am skeptical.
Why not use lipothiamine or occasionally sulbutiamine instead for this purpose?
mrblah
4 months ago
the older i get, and more in tune with my body i become, the more i'm thinking everything is connected to metabolism... it is, after all, the primary thing life does as it relates to energy. the b vitamins, and specifically b1 is a precursor/cofactor in almost every metabolic pathway. i only high dosed it for a couple months, just taking 150mg with ala daily now, but my tinnitus that i've had for 20 years is gone unless it gets triggered by movie or video game sound design during explosion or gun fight scenes (ugh)
OutOfHere
4 months ago
You seem like a good candidate to try lipothiamine.
As for ALA, I take the r- fraction form.
wppick
4 months ago
Try experimenting with diet like cutting out/down on sugar or salt and see if it makes any difference. There's no strong evidence that EMF can cause tinnitus but would be interesting to test that out somehow too (camping/cabin trip in a radio free zone?)
mjsabby
4 months ago
I got it at 39, still have it, you'll be fine.
neonsunset
4 months ago
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